Along with good medical care, surviving Hyperemesis Gravidarum (HG) means finding others who understand. Here are some ways to make connections.
Facebook Support Groups
The HER Foundation offers multiple support groups on Facebook. Even when the platform is the same, the groups are not. Every Facebook support group will develop a culture and tone all its own. At HER, our pregnancy support group is strict about photos, trigger warnings, and never allows video to protect our sickest moms. We have a community group to stay connected outside of HG. Some groups focus on postpartum recovery, still others on parenting HG kids, and we even have a group for The Netherlands. Our groups are carefully moderated, and misinformation about HG is deleted.
HER Foundation Monthly Online Support Group
As a service to moms with a current or prior diagnosis of HG, the HER Foundation will host free, monthly, online support groups via Zoom on the third Thursday of the month from 12:00 – 1:00 PM/CST. Meeting information.
Other types of digital communities
A community can grow in many digital spaces such as social media pages, Reddit, and other platforms. These can be great places to share experiences, but remember that personal experiences aren’t the same as scientific research. When asking questions about HG, rely on evidence based information from peer reviewed and expert sources. And ALWAYS check with your doctor before making a change to your medical care.
Bloggers and Influencers
Stories from bloggers and influencers can help us to feel validated and do the important work of raising awareness about HG. We get to follow their journey with HG as well as their recovery, as much as they are willing to share. We relate to these people and can grow to trust them immensely. It’s wonderful to enjoy their stories and make friends on their platforms.
Some of our favorite storytellers are our own HER Ambassadors.
Three things to remember when connecting online:
- Personal experiences and opinions are not the same as scientific research and personal medical care.
- The internet is never truly private, so be cautious what you share.
- Learning from the experience of others helps with learning about HG. Take the questions you gather to your personal medical provider.