Know the Details
Track symptoms & medications with our free HELP Score. Share the Insights Report with your care team which also shows your weight loss, food/fluid intake, and output (urine, etc).
Don’t Go Alone
Bring someone to your appointments to help you communicate your needs. Prepare a list of questions in advance. Print & share HER’s evidence-based resources with your provider: treatment algorithm, protocol, and research.
Talk about Treatment
Request Vitamins, Electrolytes, and Nutrition
Request vitamins and electrolytes in IVs, and be open to a trial of a feeding tube for supplemental nutrition. Take B1/thiamin.
Ask how to contact your provider directly if treatment isn’t working. Sign up for the patient portal, if possible, to send messages, review information and check for errors. Seek a second opinion or change providers if needed.
Inquire about a case manager from your insurance. Seek support from the HER Foundation & share resources with family.