Mission & Goals
The HER foundation is dedicated to those suffering from hyperemesis
gravidarum or those who have survived it. Our mission is
to advance HG research, provide education and support to those
seeking effective management
strategies for hyperemesis gravidarum
(HG). Only those who experience
HG can truly know how difficult it is! The HER Foundation is
the voice of support and hope to all who are faced with
managing HG.
The HER Foundation also endeavors
to achieve the following:
- Minimize the suffering and complications related to HG
through education.
- Eliminate the need to terminate pregnancies due to ineffective treatment.
- Eradicate maternal or fetal mortality due to a delay in
or a lack of treatment.
- Improve management by providing a forum
to discuss treatments and outcomes.
- Develop a universal, adaptable treatment
protocol to ensure consistent, proactive care.
- Raise awareness of the debilitating
effects of HG to increase
support and access to effective medical care.
- Educate practitioners, families and supporters
on ways to manage and successfully cope.
- Expand HG education and awareness in medical and allied
health schools.
- Contribute to the accuracy of HG related information in
publications and
through our current
research.
- Increase awareness of Postpartum
Depression & Post-Traumatic
Stress Syndrome following
HG to ensure treatment.
- Raise funds to support
HG research and awareness, as well as publication of education
materials.
USC / HER Foundation Proposed
Research Topics ($2.5 million required)
- Maternal/Fetal death (associated meds, complications,
cause, etc.)
- Rare Complications (maternal and fetal)
- PICC/TPN complications, effectiveness & fetal outcomes
- Trauma after HG (PTSD)
- Cognitive effects & treatment after HG (maternal, fetal)
- Intrauterine programming (endocrine, emotional)
- Twin study Pedigree study (maternal and paternal lines)
**
- Genetic link (DNA analysis)**
- Wernicke's Encephalopathy
- Attitudes of health professionals
- Modes of nutritional support
- Long- and short-term fetal disorders (triple A, neurodevelopmental/behavioral
disorders)
- Effects of HG on family (relationships, child trauma)
- Long-term health issues of HG (autoimmune, musculoskeletal,
metabolic)
- Treatment strategies/outcomes
**Project has started
Publications & Misc
Projects:
- Improve accuracy of general population books on pregnancy
(e.g. What to Expect, Pregnancy Handbook)
- Protocol for nutritional supplementation (criteria, duration)
- Assessment forms for health professionals
- Multilingual brochures
- Continuing Education for nurses
- Side-effects of meds
- Patient perceptions of prenatal care with/without HG
- Health professional attitudes & beliefs about HG
- HG management
- HG treatment protocol
- Survey Research Summaries
- HG & Foundation Awareness
- HG Symposium to link/educate health professionals & patients
- Abnormal outcomes Database (Maternal & Fetal)
Updated on:
Aug. 15, 2006 |
